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Living with MPN

Being diagnosed with a rare cancer can be frightening for both the patient and their loved ones. Your journey with MPN will be somewhat unique, and your symptoms may or may not have a significant impact on your quality of life. Your disease may progress very slowly, or more rapidly.

Despite the fact that MPNs affect only about 1 in 100,000 people, the disease group is gaining more and more attention thanks to organizations like the Canadian MPN Group and other patient advocates.

There are now MPN treatment centres in all of Canada’s major cities, and many exciting new treatment options being explored here and around the world. A growing number of tools and information resources, including this website, are available to help you and your primary healthcare provider better understand the disease and available treatment options.

There are also support groups you can turn to, where patients and friends meet in person and online to share their experiences with MPN.

We encourage you to explore them all.

Stay up to date

Read the Canadian MPN Group newsletter for the latest in the field.

Watch Dr Vikas Gupta speak about Stem Cell Transplant for Myelofibrosis in the JAK2 Inhibitor Era.

Download the new MPN eSimple app.

We need your help

The Canadian MPN Group relies on donor contributions to keep our work going. Can you help?

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